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SHHH Positions and Policies

As issues that face people who are hard of hearing are identified SHHH develops position papers outlining the issues and where the organization stands on each one. The position papers are developed through a formal process of the SHHH Board of Trustees. A draft is written on a particular topic and circulated for review and input. Key stakeholders may also be asked for input. Several revisions may be needed before a final version is presented to the full board for their vote. The position paper is then published in Hearing Loss: the Journal of Self Help for Hard of Hearing People.

SHHH State Offices, Associations, and Chapters find the position papers a valuable resource when working with agencies and professional organizations in their respective states.

Following is a list of the policy and position papers that have been developed to date.

SHHH Position / Policy Papers
Using Them the Best Way

by Marcia Finisdore

Through the SHHH Network discuss the various aspects of a particular issue. This can also be an excellent way to educate new members about different aspects of hearing loss. Policy papers can be published in your chapter newsletter. If one of the position papers reflects a particular issue for your chapter or for some members, a chapter might want to gather a group of membersto approach a legislator or government agency for help in addressing the issue and use the position paper for written explanation of the problem.

For example, one of the greatest frustrations people with hearing loss often face is the lack of assistive listening devices. If some of the members of your chapter want to make sure a movie theater or town meeting has listening systems, you might want to visit the theater or town officials using the position paper on hearing assistive technologies. Your personal experiences, your desire to attend the movies or town meetings, and the position paper can often help inform people and persuade them to install assistive listening systems.

Chapters and groups are frequently asked questions about how SHHH feels about cochlear implants, education of children with hearing loss, or other issues. Position papers can be distributed to help answer these questions. You may also want to be very proactive (a characteristic of many members!) and send the position papers to relevant leaders in your community. Members can be available to answer questions or discuss the issue in greater depth.

One of the most important places for SHHH position papers to be widely disseminated is at the grass-roots level. The more all SHHH members know about our positions and talk about them in their communities, the sooner the world will become a more accessible place for persons with hearing loss. As you know, SHHH position papers reflect the needs and desires of our members. They talk about the myriad aspects of hearing loss, and what we need in order to achieve our goals: to successfully live and function in the hearing world and to be able to communicate with our loved ones, succeed in our work, and contribute to our communities. Our positions, from the provision of assistive listening devices, to universal screening of infants, to training for vocational rehabilitation counselors, are all directed toward these two major goals:

  1. Ensuring that hard of hearing people, children and parents can benefit from the technology, policies and practices that allow them to succeed; and,
  2. Ensuring that the professionals who deliver services truly understand our needs and the barriers we face.

The more you know and talk about SHHH positions, the more effectively you can advocate. As we all know, some advocacy takes place in Washington, D.C., and some in our state capitals. A great deal of it also takes place in our local communities and in SHHH Chapters across the country. When thousands of SHHH members are writing to their congressmen and state legislators, to regulators and to professionals, our voices are heard and heeded.

How Do Members Actually Use the Position Papers?

There are many ways to do that. One is to set aside a chapter meeting to talk about the papers. You might want to invite a group of audiologists or hearing aid dispensers to share the position on hearing aids. This could include the position on telecoils, binaural amplification, return policy, and group hearing aid orientation. This could be the start of a great relationship between local audiologists and your chapter. Even more, contact your state Speech and Hearing Association and ask if you can submit a paper for presentation on SHHH positions on the above issues at their next state convention.

Another Example of Advocating Using an SHHH Position

Hard of hearing people are very often underserved by the vocational rehabilitation programs in operation throughout the country. This is so because hard of hearing people are not considered severely disabled. Few counselors have the training to understand the broad range of issues that affect hard of hearing people. Invite counselors to a chapter meeting or ask them if you can do a presentation for counselors at your local vocational rehabilitation office. Learning from people who are living with the problem, and who experience difficulty on the job, is the best education that can be provided by those who are helping persons with hearing loss find employment.

SHHH’s recent initiative for children who are hard of hearing opens up many opportunities for chapters to become involved with local school districts and the state department of education. Teachers often do not understand that the educational needs of hard of hearing children are very different than for deaf children. Because SHHH members unders tand the importance of acoustics, lighting, noise levels, and visual environment, they can speak with authority to educators about what hard of hearing children need in the classroom. Call your local school district to see how hard of hearing children are accommodated. Find out if assistive listening devices are provided in the classroom. Are the floors carpeted? Many teachers will welcome the knowledge you have, and parents will be grateful that someone in the community understands hearing aids, residual hearing, telecoils, and hearing assistive listening devices all defined in SHHH position papers and all things their children are or should be experiencing.

At the 1999 SHHH Convention in New Orleans (June 27 - 30), there were many sessions that discussed different aspects of our position papers - and many opportunities to learn more from and share your experiences with other members from all over the country. It was also a chance to let the board of trustees and the SHHH staff know of your concerns and your issues. Even more, I’d love to hear how you are using the position papers in your chapters. The best ideas are generated by our membership on the local level. Please do not hesitate to write to me care of the SHHH National office.

Marcia Finisdore is a Past-President of the SHHH Board of Trustees and serves as Co-Director of the SHHH Pennsylvania State Office.


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